Daya – Nepal

The name of the child in this story has been changed to protect confidentiality.

Daya is a Bhutanese refugee living in Nepal. He lost his mother to drug-resistant TB (DR-TB) in 2011, despite her regular compliance with DR-TB treatment which was supervised daily by a health worker.

A few days after Daya’s mother’s death, 7-year-old Daya began coughing and presented a mild fever. After several months Daya’s condition was not improving. His grandmother took him to a hospital where his sputum tested positive for DR-TB. Daya weighed only 12 kg (26.5 lbs) when he was admitted to the hospital. Daya was started on a supervised DR-TB regimen and has been taking his TB medications regularly for ten months.

Daya lives in a refugee camp in eastern Nepal with his grandmother and two aunts, all of whom are also being treated for DR-TB. The high pill burden and painful daily injections have made treatment particularly difficult for Daya. The health workers who are caring for Daya stress the need for increased awareness of TB and for TB prevention in the camp where Daya and his family live.

Story Collected by: The Britain Nepal Medical Trust