Category Archives: Announcements

On July 15 2013, the Sentinel Project, sponsored by the United States Agency for International Development’s TB CARE II project, organized “Improving the Quality of Care for Children with Drug-Resistant TB” in Dhaka, Bangladesh. The workshop was attended by a total of 35 participants, primarily pediatricians from public and private hospitals and medical colleges. Local and international experts presented on pediatric MDR TB, diagnostic and treatment challenges, strategies for ensuring treatment adherence, monitoring and infection control. A special session demonstrated the gastric aspirate, a technique used for obtaining sputum samples from very young patients.  Participants discussed and recommended priority actions for scaling up the availability of services for pediatric MDR TB patients in Bangladesh. The recommendations include establishing a working group to oversee the planning and implementation of pediatric MDR-TB activities and provide clinical guidance; the design and implementation of a pilot project on contact tracing including specimen collection and referral; conducting operational research to support policy and strategy formulations; and updating medical curricula to improve education on the management of childhood TB.

We are pleased to share a recent poster presentation: “Administering Second-Line Antituberculous Medications to Children with Multidrug-Resistant Tuberculosis: A Qualitative Study.” The poster was presented by Erica Lessem at the Clinical Pharmacology Workshop on New TB Drugs on September 9, 2013 in Denver Colorado. This poster presents results from a very small qualitative study of clinicians providing care to children with MDR-TB, and points to the need to improved pediatric formulations for second-line drugs.

From June 17-19 2013, the National Institute for Research in Tuberculosis and the Sentinel Project on Pediatric Drug-Resistant TB sponsored a training workshop on “Improving the Quality of Care for Children with TB and Drug-Resistant TB” in Chennai, India. The workshop was attended by 48 participants, primarily pediatricians from the public, private, and university sector, including all states of India and Nepal. The course was well-received by participants and all participants were engaged actively in the program. There was lively discussion and debate on both clinical and policy issues. The summary report can be found here, and recommendations can be found here.

On March 21, 2013, the Sentinel Project on Pediatric Drug-Resistant Tuberculosis and Treatment Action Group (TAG) published We Can Heal, a collection of stories of 30 children in 30 countries affected by this disease. The stories call for urgent attention to this global threat to children, and are a testament to the need for improved programs, policies, and tools. The global community must commit long overdue political will and resources to address the gaps identified in this collection and to tackle all forms of TB in children necessary to achieve zero TB deaths, new infections, and suffering.  

The stories submission page for Phase II of the Sentinel Project on Pediatric Drug-Resistant Tuberculosis is now live! Check it out here.

As the January 24th deadline approaches, we are still working to collect stories from as many countries as possible to highlight in our next report, which will be launched on World TB Day, March 2013.  Please help us identify stories of children with DR-TB to highlight in our report.  It can be a child who died with or without treatment, or a good outcome — we are gathering both.

Alternatively, if you do not personally know of any cases, but know of a colleague who might, please pass this request along and refer them to the new “submissions page” of the Sentinel Project website.  There are links available on the submissions page where they can download the story collection framework document in English (attached), French, Spanish and Russian — this framework includes a consent form and details the type of information we are looking to include in the stories we collect.

We look forward to working together to advocate for better drugs and drug formulations, diagnostics, and access to care for children with DR-TB!

Stories and/or completed frameworks can be sent to sentinel_project@hms.harvard.edu and questions directed to Lindsay McKenna at Lindsay.McKenna@treatmentactiongroup.org.