Aneta – Ukraine

The name of the child in this story has been changed to protect confidentiality.

Aneta, a 16 year old from Ukraine, first began to show signs of illness in November 2007. A month later she was diagnosed with tuberculosis (TB). At the time of Aneta’s TB diagnosis, her doctors sent her sputum specimen to the lab for culture and to test for resistance to both first- and second-line drugs.

In February 2008, two months after the specimen was sent to the lab for testing, the results showed Aneta’s strain of TB was resistant to several first- and second-line drugs including isoniazid, rifampin, streptomycin, ethambutol, kanamycin, rifabutin, and ethionamide.

Aneta’s doctors believe she had been infected with this drug-resistant tuberculosis (DR-TB) strain by a neighbor who had contracted TB while in prison. Aneta’s neighbor later died of TB.

Aneta’s doctors treated her with a regimen that included second-line TB drugs.  During her treatment, Aneta struggled to tolerate these often toxic drugs and suffered from depression. Aneta’s treatment also caused financial difficulties for Aneta and her family.

In August 2008, 6 months after being diagnosed with DR-TB, Aneta was discharged from the hospital. Aneta would complete the continuation phase of her DR-TB treatment at home.

In May 2012, Aneta died. She was 21 years old.

Story Collected by: Irina Platonova, Lviv Research Institute of Epidemiology and Hygiene (LRIEH)