sentinelproject

Publication of Proposed Research Definitions for Pediatric DR-TB

sentinelproject — Fri, 12 Apr 2013 16:22:17 +0000

We are delighted to announce and share a new resource emerging from our network’s collaboration, “Consensus Statement on Research Definitions for Drug-Resistant Tuberculosis in Children.” The paper was published online in the Journal of Pediatric Infectious Diseases Society yesterday and the full reference is below. It was written by a Sentinel Project Task Force led by James Seddon. The aim of this paper is to advance a consistent terminology for use in research that we hope will result in more comparable data about children with DR-TB which can lead to more efficient syntheses and collective learning.

We also want to thank Professors Anneke Hesseling and Simon Schaaf of Stellenbosch University who provided funds to cover the costs of making this article immediately ‘Open Access.’

Full reference: Seddon JA, Perez-Velez CM, Schaaf HS, Furin JJ, Marais BJ, Tebruegge M, Detjen A, Hesseling AC, Shah S, Adams LV, Starke JR, Swaminathan S, Becerra MC, on behalf of the Sentinel Project on Pediatric Drug-Resistant Tuberculosis. Consensus statement on research definitions for drug-resistant tuberculosis in children. Journal of the Pediatric Infectious Diseases Society, first published online April 10, 2013. doi:10.1093/jpids/pit012

New Collection of Stories Published: “We Can Heal”

sentinelproject — Thu, 21 Mar 2013 15:42:02 +0000

On March 21, 2013, the Sentinel Project on Pediatric Drug-Resistant Tuberculosis and Treatment Action Group (TAG) published We Can Heal, a collection of stories of 30 children in 30 countries affected by this disease. The stories call for urgent attention to this global threat to children, and are a testament to the need for improved programs, policies, and tools. The global community must commit long overdue political will and resources to address the gaps identified in this collection and to tackle all forms of TB in children necessary to achieve zero TB deaths, new infections, and suffering.

Request for Submissions: Child DR-TB Stories

sentinelproject — Tue, 04 Dec 2012 19:13:15 +0000

The stories submission page for Phase II of the Sentinel Project on Pediatric Drug-Resistant Tuberculosis is now live! Check it out here.

As the January 24th deadline approaches, we are still working to collect stories from as many countries as possible to highlight in our next report, which will be launched on World TB Day, March 2013. Please help us identify stories of children with DR-TB to highlight in our report. It can be a child who died with or without treatment, or a good outcome — we are gathering both.

Alternatively, if you do not personally know of any cases, but know of a colleague who might, please pass this request along and refer them to the new “submissions page” of the Sentinel Project website. There are links available on the submissions page where they can download the story collection framework document in English (attached), French, Spanish and Russian — this framework includes a consent form and details the type of information we are looking to include in the stories we collect.

We look forward to working together to advocate for better drugs and drug formulations, diagnostics, and access to care for children with DR-TB!

Stories and/or completed frameworks can be sent to sentinel_project@hms.harvard.edu and questions directed to Lindsay McKenna at Lindsay.McKenna@treatmentactiongroup.org.

New Field Guide for the Management of MDR-TB in Children

sentinelproject — Mon, 26 Nov 2012 14:28:01 +0000

In November 2012, one of the Sentinel Project task forces, led by Dr. Jennifer Furin, published this new Field Guide. The full citation is:

Management of Multidrug-Resistant Tuberculosis in Children: A Field Guide. Boston, USA: The Sentinel Project for Pediatric Drug-Resistant Tuberculosis; November 2012.

This Field Guide is available for download on the Treatment Guidance page.

If you would like to receive printed versions of this Field Guide, please send an email with this request to sentinel_project@hms.harvard.edu and include your name and mailing address. Please also let us know how many copies you would like to receive.

In Memory of Dr. Tengiz Gvasalia

sentinelproject — Fri, 09 Mar 2012 18:50:17 +0000

Dr. Tengiz Gvasalia, head of pediatric TB programs in the country of Georgia, died on February 13, 2012 at the age of 65. Dr. Gvasalia was a compassionate pediatric TB provider who saved the lives of hundreds of children with TB in Georgia. In addition, he was the first physician to treat children with drug-resistant TB in the country. He was an exemplary doctor, skilled leader, and a masterful teacher. Perhaps most importantly, Dr. Gvasalia was a fierce advocate for children with TB.

Dr. Gvasalia was much beloved by those he cared for and it was common to see him surrounded by his young patients and their families outside of the children’s TB hospital in Tbilisi. His warmth was felt by all who encountered him. In addition to providing high quality medical care, Dr. Gvasalia recognized the horrible social conditions faced by many of his patients and their families. He went out of his way to make sure their needs were met–including providing food, housing, clothes, and toys for the families under his care. An avid artist, he taught the children and families in his care to use art as part of their healing. “Without him here,” noted a colleague, “the place is not the same. We have lost our heart.”

Dr. Gvasalia was memorialized at a service on Friday, February 17th held at the National Center for TB and Lung Disease in Tbilisi. A memorial fund has been established in his name to continue to meet the social needs of his patients and their families. In this way, Dr. Gvasalia will continue to provide comfort and health to the smallest victims of TB. For inquiries or to make a donation, please contact Dr. Jennifer Furin (jjf38@case.edu).